'Big issues' in neurodevelopment for children and adults with congenital heart disease

Charlotte E. Verrall; Gillian M. Blue; Alison Loughran-Fowlds; Nadine Kasparian; Jozef Gecz; Karen Walker; Sally L. Dunwoodie; Rachael Cordina; Gary Sholler; Nadia Badawi; David Winlaw

doi:10.1136/openhrt-2018-000998

'Big issues' in neurodevelopment for children and adults with congenital heart disease

Charlotte E. Verrall, Gillian M. Blue, Alison Loughran-Fowlds, Nadine Kasparian, Jozef Gecz, Karen Walker, Sally L. Dunwoodie, Rachael Cordina, Gary Sholler, Nadia Badawi, David Winlaw

Research output: Contribution to journal › Article › peer-review

65 Citations (Scopus)

Abstract

It is established that neurodevelopmental disability (NDD) is common in neonates undergoing complex surgery for congenital heart disease (CHD); however, the trajectory of disability over the lifetime of individuals with CHD is unknown. Several â € big issues' remain undetermined and further research is needed in order to optimise patient care and service delivery, to assess the efficacy of intervention strategies and to promote best outcomes in individuals of all ages with CHD. This review article discusses â € gaps' in our knowledge of NDD in CHD and proposes future directions.

Original language	English
Article number	e000998
Journal	Open Heart
Volume	6
Issue number	2
DOIs	https://doi.org/10.1136/openhrt-2018-000998
Publication status	Published or Issued - 1 Jul 2019
Externally published	Yes

Keywords

congenital heart disease
genetics
paediatric cardiology
quality of care and outcomes

ASJC Scopus subject areas

Cardiology and Cardiovascular Medicine

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10.1136/openhrt-2018-000998

Cite this

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title = "'Big issues' in neurodevelopment for children and adults with congenital heart disease",

abstract = "It is established that neurodevelopmental disability (NDD) is common in neonates undergoing complex surgery for congenital heart disease (CHD); however, the trajectory of disability over the lifetime of individuals with CHD is unknown. Several {\^a} € big issues' remain undetermined and further research is needed in order to optimise patient care and service delivery, to assess the efficacy of intervention strategies and to promote best outcomes in individuals of all ages with CHD. This review article discusses {\^a} € gaps' in our knowledge of NDD in CHD and proposes future directions.",

keywords = "congenital heart disease, genetics, paediatric cardiology, quality of care and outcomes",

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doi = "10.1136/openhrt-2018-000998",

language = "English",

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AU - Verrall, Charlotte E.

AU - Blue, Gillian M.

AU - Loughran-Fowlds, Alison

AU - Kasparian, Nadine

AU - Gecz, Jozef

AU - Walker, Karen

AU - Dunwoodie, Sally L.

AU - Cordina, Rachael

AU - Sholler, Gary

AU - Badawi, Nadia

AU - Winlaw, David

PY - 2019/7/1

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N2 - It is established that neurodevelopmental disability (NDD) is common in neonates undergoing complex surgery for congenital heart disease (CHD); however, the trajectory of disability over the lifetime of individuals with CHD is unknown. Several â € big issues' remain undetermined and further research is needed in order to optimise patient care and service delivery, to assess the efficacy of intervention strategies and to promote best outcomes in individuals of all ages with CHD. This review article discusses â € gaps' in our knowledge of NDD in CHD and proposes future directions.

AB - It is established that neurodevelopmental disability (NDD) is common in neonates undergoing complex surgery for congenital heart disease (CHD); however, the trajectory of disability over the lifetime of individuals with CHD is unknown. Several â € big issues' remain undetermined and further research is needed in order to optimise patient care and service delivery, to assess the efficacy of intervention strategies and to promote best outcomes in individuals of all ages with CHD. This review article discusses â € gaps' in our knowledge of NDD in CHD and proposes future directions.

KW - congenital heart disease

KW - genetics

KW - paediatric cardiology

KW - quality of care and outcomes

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JO - Open Heart

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ER -

'Big issues' in neurodevelopment for children and adults with congenital heart disease

Abstract

Keywords

ASJC Scopus subject areas

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