@article{12a47ce9f42c4293baeb0037d5ad0760,
title = "Cocreation of a digital patient health hub to enhance education and person-centred integrated care post hip fracture: mixed-methods study protocol",
abstract = "Introduction Older people with hip fractures often require long-term care and a crucial aspect is the provision of quality health information to patients and their carers to support continuity of care. If patients are well informed about their health condition and caring needs, particularly posthospital discharge into the community setting, this may support recovery and improve quality of life. As internet and mobile access reach every household, it is possible to deliver a new model of service using a digital education platform as a personal health hub where both patients and their providers of care can establish a more efficient information integration and exchange process. This protocol details proposed research, which aims to develop a 'model of care' by using a digital health solution that will allow delivery of high quality and patient-centred information, integrated into the existing process delivered within the community setting. Methods and analysis This phase of the study uses a pragmatic mixed-methods design and a participatory approach through engagement of patients, their carers and healthcare providers from multiple disciplines to inform the development of a digital health platform. Quantitative methods will explore health literacy and e-health literacy among older people with hip fractures admitted to the two public tertiary care hospitals in Adelaide, South Australia. Qualitative methods will provide an understanding of aspects of content and context required for the digital health platform to be developed in order to deliver quality health information. The study will use appropriate theoretical frameworks and constructs to guide the design, analysis and overall conduct of the research study. The scope of the study intends to ultimately empower patients and their carers to improve self-management and to better use coordinated services at the community level. This could prevent further falls including associated injuries or new fractures; reduce new hospital admissions and improve confidence and engagement by limiting the psychologically restrictive 'fear of falls'. Ethics and dissemination The study has been approved by the Human Research Ethics Committee of the Central Adelaide Local Health Network, South Australia (SA) Health, Government of South Australia and the University of Adelaide Human Research Ethics Committee. Findings from the study will be published in suitable peer-reviewed journals and disseminated through workshops or conferences.",
keywords = "digital health, health literacy, hip fracture, mixed methods, patient and public involvement, patient education",
author = "Lalit Yadav and Tiffany Gill and Anita Taylor and Unyime Jasper and {De Young}, Jen and Renuka Visvanathan and Chehade, {Mellick J.}",
note = "Funding Information: Ethics approval The proposed study has been approved by the Human Research Ethics Committee of the Central Adelaide Local Health Network, SA Health, Government of South Australia (HREC/18/CALHN/687), and the University of Adelaide (HREC reference no. 33 383). Funding Information: Funding This study is financially supported through NHMRC Centre for Research Excellence in Frailty and Healthy Ageing at the Adelaide Medical School, the University of Adelaide (NHMRC Grant ID-1102208). LY and UJ are supported through Commonwealth Government of Australia Research Training Program Scholarship and the University of Adelaide International Scholarship respectively. No external sources of funding will be received. Funding Information: Older people including former patients with hip fractures, their family members and representatives from residential aged care providers were involved in the early conceptualisation phase through a consumer research showcase event. This event was hosted by Multicultural Aged Care South Australia and National Health and Medical Research Council (NHMRC) Centre for Research Excellence in Frailty and Healthy Ageing, Adelaide Medical School, the University of Adelaide. One of the authors (LY) led the discussion with the event participants to understand the direction of this research process and informed the study design. Further, the study steering group will also include representation from patients, consumers group and residential aged care providers to guide the conduct of the study at each phase and will be closely monitored. Funding Information: 1Center for Research Excellence in Frailty and Healthy Ageing, Adelaide Medical School, The University of Adelaide, Adelaide, South Australia, Australia 2Orthopaedic and Trauma, Royal Adelaide Hospital, Adelaide, South Australia, Australia 3Adelaide Medical School, Faculty of Health and Medical Sciences, The University of Adelaide, Adelaide, South Australia, Australia 4Aged and Extended Care, The Queen Elizabeth Hospital, Woodville South, South Australia, Australia Acknowledgements The authors would like to acknowledge the consumer group who representated the research showcase event-2018, held in Adelaide, South Australia for their valuable inputs. Further, individual team members for their encouragement and support for the study, form the following units: CRE-Frailty and Healthy Ageing at the Adelaide Medical School, the University of Adelaide; Department of Orthopaedic and Trauma, Royal Adelaide Hospital; and Aged and Extended Care, The Queen Elizabeth Hospital, Adelaide, South Australia.",
year = "2019",
month = dec,
day = "18",
doi = "10.1136/bmjopen-2019-033128",
language = "English",
volume = "9",
journal = "BMJ open",
issn = "2044-6055",
publisher = "BMJ Publishing Group",
number = "12",
}